In April 2021, Esteban Bullrich, a former senator and Minister of
Education in Argentina, was diagnosed with ALS. In response, his
family and friends established a foundation dedicated to enhancing
the quality of life for those affected by this disease and their
families.
ALS is a degenerative neurological disease
that impacts motor neurons, leading to progressive muscle
paralysis.
The causes of this disease are still unknown. Hereditary factors contribute to only 5 to 10% of ALS cases.
While ALS can affect adults of any age, the majority of those
diagnosed are over 40 years old, with the highest incidence
occurring between 50 and 70 years of age.
It is estimated that in Argentina, approximately 3,000 people
are affected by ALS each year.
At the Foundation we focus on 4 areas to provide support to the entire community committed to ALS:
We provide support and counseling for individuals with ALS and their families, creating opportunities for connection and companionship.
We support the research of treatments developed in other countries, allowing Argentine patients to actively participate.
We provide training for healthcare professionals and students to enable early diagnosis of ALS and ensure proper care.
We aim to increase awareness and spread information about ALS through media campaigns, social media, and the organization of events.
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FAMILIES SUPPORTED
34
12
4.251
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We were honored for our “Living with ALS as a Family” program. Through virtual and in-person sessions, we support ALS patients and their families nationwide.
Granted by the Rotary Club of Buenos Aires, this distinction reaffirms our commitment to improving the quality of life of ALS patients.
From Monday, June 3 to Friday, June 28, 2024, an online charity auction will be held for 28 official jerseys autographed by the players. These were donated by the Argentine Football League and the AFA.