Esteban Bullrich Foundation

Welcome

In April 2021, Esteban Bullrich, a former senator and Minister of Education in Argentina, was diagnosed with ALS. In response, his family and friends established a foundation dedicated to enhancing the quality of life for those affected by this disease and their families.

ALS is a degenerative neurological disease that impacts motor neurons, leading to progressive muscle paralysis. The causes of this disease are still unknown. Hereditary factors contribute to only 5 to 10% of ALS cases. While ALS can affect adults of any age, the majority of those diagnosed are over 40 years old, with the highest incidence occurring between 50 and 70 years of age. It is estimated that in Argentina, approximately 3,000 people are affected by ALS each year.

"I am part of something much greater than myself,
and my commitment to serve remains intact".

Esteban Bullrich

Lines of Work


At the Foundation we focus on 4 areas to provide support to the entire community committed to ALS:

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We provide support and counseling for individuals with ALS and their families, creating opportunities for connection and companionship.

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We support the research of treatments developed in other countries, allowing Argentine patients to actively participate.

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We provide training for healthcare professionals and students to enable early diagnosis of ALS and ensure proper care.

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We aim to increase awareness and spread information about ALS through media campaigns, social media, and the organization of events.

The Foundation in numbers



726

FAMILIES SUPPORTED



34

PARTNERED ORGANIZATIONS

12

RESEARCH PROJECTS

4.251

STUDENTS AND HEALTH PROFESSIONALS TRAINED

162

VOLUNTEERS

Our Supporters: