What we do

At the Foundation, we focus on four areas to provide support to the entire ALS community:




Support to patients and their families

We are committed to providing assistance, counseling, and creating spaces for patients and their families to interact.

Register


Investigation

We facilitate the participation of Argentine patients in research on treatments developed in other countries and promote local research.

See projects


Training

We are dedicated to training healthcare professionals and students to achieve early diagnosis of ALS and to provide proper care for patients and their families.
Our goal is to enhance the knowledge and skills required to address this disease comprehensively so that we can offer more effective support to those in need.

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Awareness

Our goal is to increase awareness and share information about ALS through media campaigns and social networks, as well as to participate in and host events.
We aim to provide important information in a manner accessible to patients, family members, and friends and to actively involve the community in understanding and supporting those with ALS.

RegistrELA

Registry of people with ALS in Argentina

RegistrELA is our registration platform for people with Amyotrophic Lateral Sclerosis in Argentina.



HOW TO REGISTER?

STEP 1
If you or a family member or friend has been diagnosed with amyotrophic lateral sclerosis (ALS), or if you would like to register, please click on the green button below.
STEP 2
Please click the link to complete the registration form. By providing your information, you will assist us in building a database of ALS patients in Argentina.
STEP 3
You’re done! You will receive a confirmation email. Thank you for joining.
REGISTER HERE

Thank you for being part of it!

"Life is today. Every day is a gift,
and you have to enjoy it".

Esteban Bullrich